Monday, February 12, 2018

Hopeful

As of Thursday I thought she had improved.  Sara made it to school on Thursday and things went well. She asked for a sub from Wegmans for dinner.  We rode over and she complained she was car sick.  She was very nauseous and  I gave her a bottle of water.  She made it home and seemed ok.  Then complained her stomach hurt in bed.  She fell asleep at 8 and then woke up at 9:15 and said she felt sick.  Well she made it to the toilet. She then fell asleep with an icepack on head.

She seemed okay this am.  So since Marc was off I asked him to see if Sara was ok.  She called me and decided to go into school after Mass.  She made it through day!  We had her Dr. visit after school and she was released for gym and activities.  The Dr. warned her that she will be tired on and off for months.  Her lymph nodes are still enlarged but she told us that is normal.

I took my Junior and Senior Academy students on a field trip.  After that I left school early picked the kids up.  Dropped Evan off ran to the Dr. and then met Marc at church and switched kids. Evan had altar boy training.

I finally made it home around 5:30.  Sara and I are curled up on the couch.  She is eating her second bowl of watermelon, cantaloupe, and pineapple.  We certainly spend a small fortune on fruit!  At least they are eating it daily and will ask for it throughout the day.  Evan has been taking a container of raspberries for lunch every day for lunch.

Saturday Jim Kelly had his annual Hunters Day of Hope at the Buffalo Bills Fieldhouse.  It is a free fun day to celebrate families.  Well Jim had his gallbladder out on Wednesday and his wife was hospitalized with pneumonia.  Marc took Evan and his friend over, but Sara asked to stay home.  We stayed home and caught up on homework and made slime for her valentine exchange.

Sunday was a day of baking cookies, grocery shopping, and finishing book reports.

Today Sara made it to school and to dance class.  Of course tonight was parent observation night but her dance teacher is a good friend, her former 2nd grade teacher, and my former student.  She spent the entire class getting Sara up to speed on the recital dance.  Sara was much more confident and happy when she left.

My mom called me after school and said she wants the old Sara back.  Sara is very mopey and not herself.  She is usually very witty, fun, and joyful.  She is much more subdued, whiny, and nervous since getting mono.  We can't wait for old Sara to make her way back and recover.

Monday, February 5, 2018

The first visit

Today was our first visit to the newly opened Children's Hospital.  I was not impressed.  Yesterday we were at our Peds again.  Sara was on day 6 of a fever and her tonsils are super swollen, red and have white spots again.  The Peds tested her for strep again.  This time I had a fantastic Dr. and she listened to all of the symptoms without discounting anything.  She suggested we see an ENT.  She promised to try and get us in Monday.  Around 8pm our home phone rang and it was her checking on Sara.  She called again this AM at 8.  Unfortunately they called 6 ENT's and could not get me in.  So we headed to the ER at children's.  The plan was to see an ENT there.

Well the plan didn't work out.  We arrived at 10am and didn't leave until 3:45.  It was run so poorly and of course I had a resident that barely listened.  Once she heard Mono she ignored everything else.  First they did a flu swab and when that was negative they did a urine analysis.  After that was negative they did a strep test.  These were not all done at the same time.  So they would do a test, we would wait for the results and then they would do the next.  It was so inefficient!  Finally I expressed my disgust at 1:45 and said I had expected bloodwork and to see and ENT.  She then returned and ordered blood and an x-ray.  The x-ray tech asked me what they were looking for!!

After all that time I asked for some ice water at 2pm.. never received it.  It was horrid we spent the entire day there and didn't find out anything new.  I can't wait for my Pediatrician to call.  I would have been better off waiting for the next ENT appointment.  We left with a hungry, tired child.  The only good part of the day was that her fever stayed below 99.2.  Of course Murphys Law we go for a fever and it disappears.  

At this point the plan is to keep her out of school for tomorrow and then reevaluate.

Friday, February 2, 2018

Weekly visits to the Pediatiricians

Since Mid -December I have taken Sara to the Pediatricians 6 times and we are scheduled to go again on Friday.  This is crazy.  Now she has a virus and is running a fever between 100 -103.  Poor Sara is so wiped out.  For the second year in a row she has missed Catholic Schools Week.  She insisted on dressing up this am and wanted me to send her picture to her teacher.  I tried to console her that each year we have made something really fantastic for school spirit day and once she gets to wear them she will have the best costume ever!

She does have a book report due on the 15th and she gets to dress like the character.  Sara chose Laura Ingalls Wilder since we had purchased a flannel nightgown and a bonnet last year.

I would have loved to have taken a sick day this week to be with Sara.  It was the start of the new semester and my Department had a curriculum day planned for today.  So my Mom has had Sara the past few days.  Thank goodness for her.  She is a lifesaver over and over again.

Evan has been a trooper this month.  I feel bad that I make him head to bed early when Marc isn't home and Sara is crying that she needs to sleep with me or fall asleep with me.  Part of the Mono has made her very clingy.  I have missed looking over his homework a few times this month.  He has a very intense teacher this year.  Her grading is not very forgiving.  For example if they are late (4th graders forget their homework) or if they don't put their name on it, or do anything except math in pencil she takes off 5 points.  She is teaching them responsibility but is very strict for a bunch of 9 year olds.  I am the opposite as a teacher and am very flexible.  But... I do teach electives.

This afternoon I called Sara and asked if anything sounded good.  She said Chipotle might.  So I picked it up on my lunch and she ate 2/3 of a very small taco.  Tonight she ate 1 3/4 more tacos.  That is the most she has eaten in days.  I am desperate to get anything into her.  Our freezer is filled with her favorite ice cream treats, frozen yogurt, and popsicles.  She has been living on Chicken noodle soup and bread this past month.  Its not because I don't make my own soup, I do.  She has been extremely hard to feed and only a few things appeal to her.  Luckily one of them has been apples.  I'm crossing my fingers that she is back to school next week.  I did make sub plans for Monday just in case.

She hasn't been to dance or gymnastics in a month and I originally planned on having her return to dance this week but unless there is a huge improvement in the next two days we will be waiting even longer.